The Bleeding Disorders Association of the Southern Tier
 (Member organization of the Hemophilia Federation of America)

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[What is a Bleeding Disorder?]

Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. The body produces 13 clotting factors. If any of them are defective or deficient, blood clotting is affected; a mild, moderate or severe bleeding disorder can result.

Some bleeding disorders, such as hemophilia, can be inherited or acquired. Others can occur from such conditions as anemia, cirrhosis of the liver, HIV, leukemia and vitamin K deficiency. They also can result from certain medications that thin the blood, including aspirin, heparin and warfarin.

Hemophilia A and B

Hemophilia C &

Factor VII Deficiency

vonWillebrand's Disease

Platelet Disorders





A Royal Disease

Hemophilia is sometimes referred to as “the royal disease,” because it affected the royal families of England, Germany, Russia and Spain in the 19th and 20th centuries. Queen Victoria of England, who ruled from 1837-1901, is believed to have been the carrier of hemophilia B, or factor IX deficiency. She passed the trait on to three of her nine children. Her son Leopold died of a hemorrhage after a fall when he was 30. Her daughters Alice and Beatrice passed it on to several of their children. Alice’s daughter Alix married Tsar Nicholas of Russia, whose son Alexei had hemophilia. Their family’s entanglement with Rasputin, the Russian mystic, and their deaths during the Bolshevik Revolution have been chronicled in several books and films. Hemophilia was carried through various royal family members for three generations after Victoria, then disappeared.


"Do the 5"

Key prevention messages from the National Hemophilia Foundation’s National Prevention Program
[Do the 5] Tips for Healthy Living

Get an annual comprehensive checkup at a hemophilia treatment center.

Get vaccinated—Hepatitis A and B are preventable.

Treat bleeds early and adequately.

Exercise and maintain a healthy weight to protect your joints.

Get tested regularly for blood-borne infections.

YouTube video(s) posted /updated at on 1-31-17

YouTube video(s) posted /updated at on 2-15-17