About Us.
We are currently in our 30th year of serving the families of Central New York and the Southern Tier Region. We started as an educational source for information on bleeding disorders, but with the wealth of information on the internet, we have become the backbone for families to share their experiences with dealing with our disorders. We also provide opportunities for families and individuals to advocate to their government representatives in Albany and Washington D.C.
Types of Bleeding Disorders:
Hemophilia A or Factor VIII
Hemophilia A is a genetic disorder that doesn't allow blood to clot due to a low amount or no amount of a clotting protein called factor 8.
It is caused by a recessive trait on the X chromosome but it can be a spontaneous mutation. Women are finally being diagnosed with having Hemophilia A.
Hemophilia B or Factor IX
Hemophilia B or Christmas disease is a genetic disorder that doesn't allow blood to clot due to a low amount or no amount of a clotting protein called factor 9. Men and women can be affected equally with
Factor 9 deficiency.
Von Willebrand Disease
Von Willebrand disease or VWD is the most common bleeding disorder.
VWF or Von Willebrand factor binds to the factor VIII protein to help form a platelet plug in the formation of a clot.
For more information online : www.bleeding.org www.hemophiliafed.org www.cdc.gov www.mayoclinic.org
Calendar of Events
Check back frequently as Special Dinners and Events will be added as they become available.